On Tuesday, I had the privilege of participating in the Massachusetts State Action Day held by the National MS Society. As the current Chair of the Government Relations Advisory Committee in the Commonwealth, I was able to meet and talk with fellow MS activists and legislators. It wasn’t the first time I’d had a speaking […]
1998 – The Start of My MS Journey
Hello everyone. Today I am starting to fill you in about my journey with multiple sclerosis, and through many posts I hope that I can help you come to an aha moment, like I have from others in our community. I started having symptoms of MS when I was 23. I lived in Chicago, had […]
Movement & MS
We’ve all heard it – exercise is helpful for any health condition, including MS. When I started to write this post, I realized I had amassed no less than a dozen different articles about different exercises that could be beneficial for MS. We’re all different – MS is called a snowflake disease. And, I am […]
New Year, New Healthy Learning Opportunities
How did your 12 Days of December Self Care go? I definitely made sure to get in an activity for 12 minutes every day, but I let my guard down a little bit right at Christmas with our whole family. While it was great to have together time – and we conquered the huge crossword […]
Take Action for MS before 12/31/23 – FAA Reauthorization
When was the last time you were on a flight? If you have mobility issues, it may have been a while. There are a lot of issues that people with disabilities face when they have to travel by air – for me, the biggest one is the bathroom. It’s literally impossible to fit a person […]
12 Days of Christmas Self-Care
I’ve been listening to Christmas music a lot the last few weeks – I do wait until after Thanksgiving, but then it’s pretty much all I listen to for the month. Hearing a few versions of The 12 Days of Christmas made me think about a little extra care that I’m going to do starting […]
Combatting Holiday and MS Stress
It’s officially a week into the 2023 holiday season. While I have seen some heartwarming stories about giving and the true spirit of the holiday and humankind, I also am a little amazed at how many stories I am seeing about stress and the fact that people are so stressed out that they can’t enjoy […]
Advocacy in Action
When others learn that I am a MS Activist, the question I often get is what kind of work do you do? For me, it’s taking action to highlight a wide range of issues that impact people with multiple sclerosis and their families. One of those ways is through writing opinion pieces and getting them […]
The Oxygen Mask Rule
Traveling can be a slog whether you have MS or not. Last week I flew a few times, traveling to a couple of different cities – Madison WI and Washington DC. The airplane safety run-through at the beginning of the flight stuck with me more while I was traveling this time than others, or so […]
Mindful Thoughts about Moving MS
Welcome! It’s taken me a year since starting my Zoom classes – which I originally called MindOverMS – to get this web site off the ground. It’s kind of scary to push publish and put yourself out there, but here it goes! I live with multiple sclerosis, and was diagnosed in 1998. Right now, the […]