Author: movingmsmindfully

QiGong Series for the ChallengeWalk

I’m happy to post – sorry it’s a bit late – about my fundraiser for the 2026 MS Challenge Walk in Door County. I’m offering five special QiGong for MS classes to raise money for our Blister Sisters team. You can take one class or all five, and these are in addition to the weekly […]

Huge Wins for MS!

If you are an MS advocate or a policy wonk like me, you may have already heard the great news about some legislative wins this week. Thank you to all of the MS Advocates and Society staff for many meetings, phone calls and emails to get this through. Yesterday, Feb. 3, Congress passed legislation that […]

MS & Medical Debt

A few months ago I went in for my annual MRI, and this year my neurologist ordered the triple – brain, cervical and thoracic images – because I hadn’t done a MRI of my spine in three years. A few days after my tests, I got a letter from my health insurance company (private insurance) […]

Why Walking 50 Miles This Year Matters

I’m embarking on my first MS Challenge Walk, and going to Door County to join my sisters on their team, The Blister Sisters. They are Challenge Walk veterans for many years. We are also not fundraising newbies. We grew up going door to door asking for donations during the Jerry Lewis Telethon for Muscular Dystrophy […]

2025’s Public Policy Conference

Last week I had the privilege of being able to attend the National MS Society’s Public Policy Conference; not only did I get to attend, I was able to lead a breakout session on Monday, titled Busting Through Stress – Finding You Inner Calm in Any Situation. Being able to lead a group through breathing […]

MS Research & The Military

This week, the National MS Society announced that they learned the MS Research Program (MSRP) which was part of the Congressionally Directed Medical Research Programs (CDMRP) in the Department of Defense will not be funded in 2025. This is a big blow to research programs working to find a cure, and slow the progression, of […]

Advocating for NIH Funding

Lately there is a lot of focus on healthcare at the federal and state levels – this happens with any new administration, but this time there are many big changes going on. While that can seem stressful, there are ways that you can take action to try to make improvements for your care and that […]

Awareness in Your Body

It’s been a while since I’ve posted, and I apologize. I have a goal to be better about it, and will try to post at least once a week from here on out. It’s #MSAwarenessWeek, and I thought body awareness would be a good pairing for the week – really every moment. I saw a […]

Getting Started with Meditation

Earlier this week I was in Washington, DC with activists from the Multiple Sclerosis Society for our annual Advisory Board Committee meeting. At dinner one night, a neurologist on that Committee talked about prescribing exercise and meditation to all of his patients. Many others I spoke with over the two days talked about how difficult […]